Print Page | Report Abuse | Sign In
Registries on FHIR Session Agenda
Share |

Working Session – Registries on FHIR

PCPI Spring Conference, Ritz-Carlton Pentagon City, Arlington, VA

Agenda: Monday, March 19, 2018




Welcome & Session Opening Keynote

Doug Fridsma, MD (confirmed)

Co-chair, NQRN Interoperability Work Group








AM plenary


Introduction to Registries on FHIR and Environmental Scan

What is Registries on FHIR, goal, work to date, today, next steps

Speaker: Seth Blumenthal, MBA


Examples of previous interoperability work, both successful and not, opportunities for the registry space

Predicate infrastructure e.g., ONC CCDS, HIT technical committee, CIIC

How the work product of Registries on FHIR is going to plug back into standards infrastructure


Speaker: Julia Skapik (confirmed)

Moderator: Chrystal Price











AM plenary


Registry Interoperability: Opportunities

How to take it from concept/standard down to implementation and success

Pew grant to DCRI - investigate how various registries capture data


Speaker, discussion moderator: James Tcheng, MD (confirmed)

Moderator: Seth Blumenthal





Introduction to the Registries on FHIR Common Clinical Data Set and Breakout Session Goals


Speaker: James Tcheng, MD (confirmed)

What are we asking attendees to do and why

Help us construct the rationale for why we ought to be participating in Registries on FHIR / CCDS in registries



Breakout Sessions

The Registries on FHIR Common Clinical Data Set

Facilitated by NQRN Interoperability Work Group members


1. Marketing & governance – Lead: Steve Bratt (confirmed)

Decision makers. What do we need to do at governance level to engage to get the message?

Split the group into two smaller groups to cover the same material, then combine to compare ideas for the report out in the PM plenary


2. ImplementationLeads: Anita Walden and Seth Blumenthal (confirmed)

Review the process steps to implement the standards in registries and EHRs, and then to make them available through standards bodies for others to use.


3. Clinical content developmentJames Tcheng, MD, Susan Matney (confirmed)

Review a draft set of Registries on FHIR common data elements. Possibly split into subgroups to cover these categories:

a. Interventions e.g., procedures, encounters

b. Diagnoses and findings

c. Observables e.g., labs, vitals

d. Administrative i.e., demographics, UDI

e. Medications & allergies



Lunch with rest of PCPI conference, including exhibitor showcase







PM plenary

Turning the CDEs set into a real standard with HL7: CCRF, CIMI, CIIC, etc. the entire process


Speaker, discussion moderator: Anita Walden (confirmed)
















Breakout Session Summaries


Moderator: Seth Blumenthal

Group Leader Reports:

(30min each for report & discussion)


1. Marketing & governance – Steve Bratt (confirmed)

2. Implementation – Anita Walden and Susan Matney (confirmed)

3. Clinical content development – James Tcheng, MD (confirmed)


What’s next, what to take back to your organizations on how we’re going to be partners on this journey



Session Closing Remarks

Doug Fridsma, MD (confirmed)

Co-chair, NQRN Interoperability Work Group

*Program details subject to change