The Registries on FHIR project launched in 2017 as a collaboration between PCPI, the Duke Clinical Research Institute (DCRI), Health Level Seven® International (HL7®) and the Medical Device Epidemiology Network (MDEpiNet) to demonstrate the value of adoption of common clinical data elements in registries to improve interoperability.
To date, Registries on FHIR has successfully collected and harmonized data artifacts from 38 registries to create a Common Clinical Data Set. This work has fueled interoperability efforts across registries and has served as the basis for advocating for interoperability, including revisions to the U.S. Core for Data Interoperability (USCDI), as demonstrated in the recently issued ONC Cures Notice for Proposed Rulemaking.
Chrystal Price, Associate Director for Clinical Registries recently attended the Health Level Seven International (HL7) Working Group Meeting in Montreal, Quebec to present the latest work of the Registries on FHIR project within the Common Clinical Registry Framework group and socialize the project with other work groups within HL7. The Registries on FHIR project is serving as a beacon for interoperability by demonstrating real-world examples of harmonizing data across registries and seeks to ballot the project data elements within HL7 this fall to develop a data standard for widespread use.