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A wide variety of useful publications and tools are available for those interested in or working with registries. 

Qualified Clinical Data Registries in MACRA – Fact Sheet (February 2017)
MACRA Final Rule – Deep Dive for Registries (February 2017)
Resources for Small and Rural Practices (November 2016)
Registry Business Case Tool (June 2016)
Application of HIPAA & the Common Rule to Registries
What is a Clinical Registry? (Updated 2016)
What is a Clinical Registry — Patient Edition (May 2016)
Participating in a Clinical Registry (June 2016)
Clinical Registry FAQ 
National Clinical Registry Inventory (Updated - June 2016)
Registry Vendor Assessment
Clinical Registry Maturational Framework
NQRN Consulting Services

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